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Pseudoxanthoma Elasticum (PXE) Patient Support
The Pseudoxanthoma Elasticum patient union is a great resource for information, support, and help with finding the right contacts, and a serve as a forum for connecting with others affected by PXE.
PXE Netherlands
PXE France
PXE Italy
PXE Portugal
PXE Spain
PXE Finland
PXE Germany
PXE Sweden
A Centralized Place.
For Patients. For You.
If you or a loved one has PXE, talk to your doctor about the best way to manage the condition. There is no one-size-fits-all approach to treatment, but early intervention is important for preventing complications. However, PXE Europe aims to support to the best our ability by offering:
- Resources
- Contacts
- Local Contacts
- Information
What is PXE exactly?
Pseudoxanthoma Elasticum is a rare genetic disorder that impacts the skin and other connective tissues. There are 4 main features of this condition: Generalized skin thickening, yellow-orange to reddish-brown papules, atrophic scars, and more. This condition is often misdiagnosed as lupus or scleroderma. Interested in learning more about PXE?
New Publications
We try to keep track of ongoing research and the clinical trial landscape for PXE patients interested in taking a deep dive into science.
Industry Insights
Make sure you keep up-to-date with the various developments from the industry that may help to get treatments closer to patients.
Patient Stories
It’s important to be heard and to know that you are not alone. This is why we regularly invite PXE patients to share their stories and to connect with peers.
More Updates?
We regularly share updates regarding developments in PXE.
Did we miss anything? Share it and we will include it on our website and share it with our audience.
Upcoming Events.
Check regularly for any upcoming events that might be interesting to you to learn more about PXE or to meet other PXE patients and share your experience.
Organizing an event? Let us know.
If you or someone you know has PXE and is interested in hosting an event, be sure to to let us know. We can list your event in our calendar and provide you with more information and resources.
Get in touch with someone local.
We are always ready to help. Whether you need support to get in touch with a Health Care professional or you want to talk to a peer, let us know. Leave us your details and we will be in touch soon.